ADAPTING
There is no denying that the fallout from sudden vision loss is traumatic and takes time to come to terms with. The good news is that many of the issues and challenges that seem overwhelming at first, can be overcome. The mind and body are resilient and amazing at adapting to changes due to compromised vision. The key is patience, faith and fortitude
The adaptation process is gradual and ongoing. It often begins with immediate safety concerns and basic adjustments, then progresses to more refined techniques and long-term lifestyle changes. The timeline can vary significantly from person to person (9-12 months seems to be the average amount of time.), depending on factors like the extent of vision loss and individual circumstances. It’s normal to have good days and challenging days during the adaptation process.
So… Where to start on the journey to adapting?
First and foremost, you must know that millions of people have learned to adapt to issues far more serious than losing sight in one eye or losing all sight even. I don’t mean to minimize the crisis of the situation but one quote I came across from one who is blind went something like “It’s not like I’m blind and I can’t see, I just learned to see differently. “
Those with any type of disability are beacons of faith that you can and will learn to adapt. Besides, Uncle Charles told me so.
Start with… Patience and being kind to yourself. Believe it or not, there are some incredible silver linings in all changes!
ACCEPTANCE
Acceptance begins with acknowledgement and it’s not as simple as it appears. You know you have vision loss, it’s pretty obvious, but that’s not the end of the road to acknowledgment or acceptance. It is important to not just keep the obvious in your head but to ponder the bigger picture and write your thoughts down. Consider the various impacts this vision loss will have on your life and write them down. You won’t have an exhaustive list until you’ve lived with your compromised vision for a while, but it is an exercise and giant step toward acknowledgement and acceptance.
– Allow yourself to process the emotional impact.
Acknowledge that there are emotional issues at stake allows you to accept and process the emotions associated with your vision loss, which is crucial for mental health. The emotional issues may include fear, anxiety, depression, anger, grief, loss of confidence, a hit on self-esteem, and other feelings. Again, journal the feelings. Share with a trusted friend and/or seek professional help if you feel overwhelmed. Many have found that embracing the feelings, allowing some time to wallow even (don’t fall in the well doing so) is very helpful in healing from the trauma. Pray, if you’re so inclined. The serenity prayer has worked wonders for many over the years.
– Cultivate a mindset of adaptation rather than resistance.
Meaning, try to not avoid doing something because it may exasperate a problem. Don’t stop going to the gym, or to school, or to work, or out for dinner, or whatever. Every time you take a step into the life you were living, even if it is limited, you are practicing your new life. You are learning and re-learning. You are adapting.
COMMITMENT TO ADAPTATION
“Commitment to Adapting” in the context of sudden vision loss due to a NAION (Non-Arteritic Anterior Ischemic Optic Neuropathy) event likely refers to a patient’s dedication to adjusting their life and routines following this significant change in their vision.
NAION is a condition that causes sudden, usually permanent vision loss in one eye due to reduced blood flow to the optic nerve. Given the abrupt and often irreversible nature of this vision change, a commitment to adapting would involve:
- Acceptance: Acknowledging the reality of the vision loss and being willing to move forward.
- Learning new skills: Being open to learning alternative ways of performing daily tasks and activities.
- Using assistive technologies: Embracing tools and devices designed to help those with vision impairment.
- Lifestyle modifications: Making necessary changes to one’s environment and routines to accommodate the vision loss.
- Emotional resilience: Developing coping strategies to deal with the psychological impact of vision loss.
- Rehabilitation: Actively participating in vision rehabilitation programs and therapies.
- Continuous adaptation: Recognizing that adapting is an ongoing process as circumstances may change over time.
- Seeking support: Being willing to ask for and accept help from family, friends, and professionals when needed.
This commitment is crucial for patients experiencing sudden vision loss, as it can significantly impact their quality of life and ability to maintain independence. It reflects a proactive approach to managing the challenges that come with vision impairment.
MEDICAL MANAGEMENT & UNDERSTANDING
The medical management of Non-Arteritic Anterior Ischemic Optic Neuropathy (NAION) is primarily focused on preventing further vision loss and reducing the risk of occurrence in the other eye, as there is currently no proven treatment to reverse the vision loss caused by NAION. Here’s an overview of the medical management approaches:
*Consult with your neuro-ophthalmologist before having surgery in order to advise your anesthesiologist of drug interactions and most particularly their effect on blood pressure drops.
1. Risk factor management:
Control of hypertension, diabetes, and hyperlipidemia
– Smoking cessation
– Weight management
– Sleep apnea treatment if present
2. Medications:
– Aspirin: Often prescribed to reduce the risk of NAION in the other eye, though its effectiveness is debated
– Blood pressure medications: To maintain optimal blood pressure. Blood Pressure medication for high BP should be taken in the morning, not evening.
– Cholesterol-lowering drugs: To manage hyperlipidemia
3. Avoiding potential triggers:
– Discontinuation of medications that may exacerbate the condition (e.g., certain erectile dysfunction drugs)
– Caution with use of alpha-1 adrenergic receptor antagonists
4. Monitoring:
– Regular follow-up with an ophthalmologist
– Periodic visual field testing and optic nerve examination
5. Management of associated conditions:
– Treatment of any underlying vascular diseases
– Management of sleep apnea if present
6. Neuroprotection:
– While not definitively proven, some physicians may consider neuroprotective agents
7. Experimental treatments:
– Research is ongoing into potential treatments like intravitreal injections of neuroprotective agents or stem cell therapies, but these are not yet standard practice
8. Visual rehabilitation:
– Referral to low vision specialists if significant visual impairment persists
9. Psychological support:
– Counseling or support groups to help cope with vision loss
10. Patient education:
– Information about the condition, its prognosis, and ways to optimize remaining vision
11. Lifestyle modifications:
– Advice on adaptations for daily living with reduced vision
It’s important to note that while these approaches are commonly used, the effectiveness of many interventions for NAION remains controversial due to limited high-quality evidence. Management is often individualized based on the patient’s specific circumstances and risk factors.
Additionally, research into new treatment options is ongoing, so it’s always advisable for patients to stay in regular contact with their ophthalmologist for the most up-to-date management approaches.
Derived from AI query
UNDERSTANDING THE CONDITION
- – Learn about NAION and its effects on vision.
– Set realistic expectations for recovery, as vision loss from NAION is often permanent. Though there is no treatment for NAION it must be remembered that another event could take place in the good eye. Not likely, but possible. There are several risk factors to keep in mind. All of them, with the exception of the “architectural” disc-to-cup ratio, allow for proactive efforts to address and bring under control. They include:
– Narrow cup-to-disc ratio (the only single physical one)
– Blood Pressure (Too high or to low)
– Sleep Apnea
– Obesity
– High cholesterol
– Diabetes
– Possibly the use of ED drugs
– Possibly the use of Ozempric
Consult with your neuro-ophthalmologist before having surgery in order to advise your anesthesiologist of drug interactions and most particularly their effect on blood pressure drops. The are other considerations of risk factors that are addressed under Medicine & Drugs.
– Since there is a possibility, however remote, that the good Eye may be affected in the future, it seems prudent to become familiar with practical skills and technologies available and used by those with low or no vision
PRACTICAL ADAPTATIONS
– Be cautious with depth perception and spatial awareness, especially when walking, driving/parking, using power tools, etc.
The lack of depth perception is a real bugaboo in the beginning, and it may be one of the most elusive things to fully adapt to. A family member is mono vision because of NAION as of 2015. He has adapted quite well but there are things that creep up still. Depth perception plays a role in nearly everything we do. It is most noticeable from 0-20 ft. from pushing the button to retrieve a parking pass or inserting a credit card into a machine to parallel parking or parking in tight spaces. It is really annoying.
It is one thing to be focusing when stepping onto or down from a curb but is dangerous in low light or when distract by activities in your periphery.
Stepping up or off of curbs can be quite dangerous. Sometimes we may not even see the curb if we aren’t careful. We took for granted the role our peripheral vision and depth perception played in so many everyday matters. The new logic goes something like this:
Make yourself aware that curbs (or whatever other obstacles may be present).
Stop at or before the curb before stepping up or off. We used to be able to take our peripheral information in but now it is compromised. If we are in motion while turning our head to the left or right we may lose track of the curb. It happens in a fraction of a second and Boom!
You think you accounted for the curb and things would be just fine if you could just walk straight through without concern as to what is to the right or left. Life doesn’t work that way. Distractions can be very dangerous.
– Use extra care when navigating stairs or uneven surfaces.
– Adjust lighting in your environment to optimize visibility.
– Finding items in a drawer or on a rack or shelving.
Depth perception plays a much bigger role than you would think when it comes to locating a particular item in a drawer, hanging in a closet or department store, or on a rack. The brain is seeing everthing in 2-d. It’s crazy. You will benefit at home from organizing your drawers. Junk drawers are the worst!
VISUAL REHABILITATION
Work with a low vision specialist to learn techniques for maximizing remaining vision.
– Learn to rely more on the unaffected eye.
– Practice eye exercises to strengthen eye muscles and coordination.
ONGOING EMOTIONAL & PSYCHOLOGICAL ADJUSTMENT
Continue to process feelings as they arise.
– Allow yourself time to grieve the loss of vision. Yes!
– Seek support from family, friends, or support groups.
– Consider counseling to help cope with the emotional impact.
– Check the RESOURCE page for links to online groups.
– Checkout MEETUP for Meetup Groups in your area. If there are no groups in your area, consider starting one either in person or online.
– Seek professional support..
LIFESTYLE ADJUSTMENTS
For individuals with monocular vision (vision in only one eye), there are several important lifestyle adjustments to consider. These adjustments help ensure safety, maintain quality of life, and optimize the use of remaining vision. Here are some key areas to focus on:
- Depth perception:
- Be cautious when judging distances, especially while driving or engaging in sports.
- Take extra care when pouring liquids or navigating stairs.
- Consider using additional visual cues to gauge depth, such as shadows or relative sizes of objects.
- Visual field:
- Develop the habit of turning your head more to compensate for the reduced field of vision.
- Be extra vigilant of your surroundings, particularly on the side of the non-functioning eye.
- Arrange your living and working spaces to maximize visibility from your functioning eye.
- Driving:
- Check local laws regarding driving with monocular vision.
- Consider using larger side-view mirrors or add-on mirrors to expand your field of view.
- Be extra cautious when changing lanes or merging.
- Sports and physical activities:
- Wear protective eyewear to safeguard your functioning eye.
- Be aware of limitations in activities requiring depth perception or peripheral vision.
- Adapt techniques in sports like ball games to compensate for changed visual input.
- Work environment:
- Adjust computer screens and work surfaces for optimal viewing.
- Inform colleagues about your condition to prevent misunderstandings.
- Consider using assistive technologies if needed for specific tasks.
- Home safety:
- Ensure good lighting throughout your living space.
- Remove potential tripping hazards.
- Label items clearly if needed for easy identification.
- Eye care:
- Regular check-ups for your functioning eye are crucial.
- Protect your good eye with safety glasses during activities that pose a risk of eye injury.
- Psychological adjustment:
- Be patient with yourself as you adapt to changes in your vision.
- Consider joining support groups for individuals with similar conditions.
- Learn compensatory techniques:
- Practice visual scanning to expand awareness of your surroundings.
- Develop strategies for tasks that previously relied on binocular vision.
- Consider assistive devices:
- Explore options like magnifiers or special lenses that might help in specific situations.
- Maintain overall health:
- A healthy lifestyle can support your remaining vision and overall well-being.
Monocular vision can also affect various recreational and outdoor activities. Here are some considerations for the activities you mentioned and a few others:
- Nightlife and going out on the town:
- Be extra cautious in dimly lit environments like bars or clubs.
- Take care on stairs or uneven surfaces, especially in low light.
- Consider using a small flashlight or smartphone light to navigate dark areas.
- Inform friends about your condition so they can help you navigate crowded spaces.
- Shopping:
- Take extra time to scan aisles and shelves to avoid missing items.
- Be cautious of obstacles at different heights in stores.
- Ask for assistance when needed, especially in unfamiliar stores.
- Consider using a shopping list app on your phone for easy viewing.
- Fishing:
- Take extra care when casting to avoid injuring others or tangling lines.
- Be cautious when walking on slippery surfaces near water.
- Use polarized sunglasses to reduce glare and protect your functioning eye.
- Consider using a hat with a brim for additional sun protection.
- Hiking and outdoor activities:
- Use a walking stick for better balance and to probe the path ahead.
- Be extra vigilant of your surroundings, especially uneven terrain.
- Wear appropriate protective eyewear for your functioning eye.
- Consider hiking with a companion for added safety.
- Take breaks to prevent eye strain, especially in bright sunlight.
- Concerts and movies:
- Choose seats that optimize your viewing angle.
- Be cautious when moving through darkened theaters.
- Beach and water activities:
- Be extra careful with depth perception when entering water.
- Use polarized sunglasses to reduce glare on water surfaces.
- Take care when applying sunscreen to avoid getting it in your eye.
- Team sports:
- Communicate your condition to teammates and coaches.
- Consider protective eyewear designed for sports.
- Adapt your playing style to compensate for reduced peripheral vision.
- Photography:
- You may need to adjust to using a camera’s viewfinder with your functioning eye.
- Be patient when framing shots, as it might take more time.
- Cycling:
- Use extra caution, especially when checking for traffic or obstacles.
- Consider using a mirror on your bicycle or helmet for better awareness.
- Reading and computer use for extended periods:
- Take regular breaks to prevent eye strain.
- Adjust font sizes and screen contrast as needed.
- Travel:
- Inform airline staff about your condition if you need assistance.
- Take extra care in unfamiliar environments.
Remember, many people with monocular vision successfully engage in these activities. The key is to be aware of your limitations, take necessary precautions, and allow yourself time to adapt. Don’t hesitate to ask for help when needed, and always prioritize the protection of your functioning eye.
EMOTIONAL ADAPTATION
Continue to process feelings as they arise.
– Allow yourself time to grieve the loss of vision. Yes!
– Seek support from family, friends, or support groups.
– Consider counseling to help cope with the emotional impact.- Check the RESOURCE page for links to online groups.
– Checkout MEETUP for Meetup Groups in your area.
– Seek support as needed.